Hemophilia Association of the Capital Area

Board of Directors

2021-2022 HACA Board of Directors



 
Daniel Hay
Name: Daniel Hay
Board Position: President
Board member since 2019
Connection to community: My son has severe hemophilia B.
Professional information: Litigation associate at Sidley Austin LLP
We’ve been so grateful for the HACA community since we received our son’s diagnosis nearly two years ago. I want to join the board to use my experience in law and policy to help advocate for families living with hemophilia.


 
Callie Victor
Name: Callie Victor
Board Position: Vice President
Board member since 2018
Connection to the community: I've been connected to HACA since I was a young child when my mother served as the executive director and my father as treasurer of the organization. My husband, Joe, has also served as treasurer of the board.
Professional information: Assistant Professor, Division of Occupational Therapy, Shenandoah University.
I am the mother of two boys, and in my spare time enjoys walking my dogs, watching sports, and traveling.


 
Mallory O'Connor
Name: Mallory O'Connor
Board Position: Secretary
Board member since 2019
Connection to community: Hemophilia carrier
Professional information: Employed by Biotechnology Innovation Organization, a non-profit healthcare trade association
 
Serving on the HACA board has given me the ability to help give back to a community that has helped me grow both personally and professionally. I enjoy helping the community in fundraising, education and advocacy efforts through board service. I have previously served as a part of the National Hemophilia Foundation’s (NHF) National Youth Leadership Institute (NYLI), including as the NYLI representative to the NHF Board of Directors. I also currently serve on the Board of the DC Area Arizona State Alumni Group and PAC-12 Alumni Group.


 
Lindsay Runion
Name: Lindsay Runion
Board Position: Treasurer
Board member since 2020
Connection to the community: Carrier and Parent of a young son with Severe Hemophilia A.
Professional information: Regional Recruiter at Whole Foods Market, Mid-Atlantic Region. I'm originally from the suburbs of Philadelphia and moved to College Park to attend the University of Maryland. It was here that I met my future husband (and fellow HACA board member!) Luke. We've learned so much from HACA and about the world of bleeding disorders since our relatively recent introduction to the hemophilia community in early 2018.


 
Ashley Hay
Name: Ashley Hay
Board member since 2021
Connection to the Community: Many members of my family have/ had hemophilia. My favorite uncle, and my father died at relatively young ages from long term complications of the disease. My son has severe hemophilia B, and my soon-to-be-adopted son has severe hemophilia A.
Professional Information: Director of Community Support, Animal Welfare League of Arlington
I’ve been employed for a non-profit organization for four years, doing a variety of different jobs. But in my time there I’ve learned large scale event planning, strategic/ long-term planning, budgeting, and all types of marketing and community engagement ideas. My current role is Director of Community Support, providing low-cost and free veterinary clinics, emergency assistance grants, and other critical resources to pet owners in NOVA. I also oversee the volunteer program that has about 300 active volunteers, and the Humane Education programs that reach hundreds of kids each year.


 
Artura Jackson
Name: Artura Jackson
Board member since 2018
Connection to the community: von Willebrand disease
Professional information: Employed by the Maryland-National Capital Park and Planning Commission Black History Program and helps manage three historic African-American sites in Prince George's County.
My younger brother and I both have von Willebrand disease type 1. I joined HACA soon after finding out about my diagnosis in 2005. I'm an advocate of education and information for women and girls affected by bleeding disorders. I live and work in Prince George's County and am an alumna of Salisbury University with both a bachelor of arts and master's degree in history.


 
Patrick Kanu
Name: Patrick Kanu
Board member since 2019
Connection to community: I was diagnosed with severe hemophilia B at birth and have lived with it my entire life.
Professional information: I am a computer engineering student at the University of Maryland, Baltimore County (UMBC).
My mother and I have a business importing foreign goods. Additionally, it is important to me to be a part of a well-organized board that supports people living with bleeding disorders. During my leisure time, I enjoy doing photography.


 
Steve Long
Name: Steve Long
Board member from 2013-2019; 2020
Connection to the community: Hemophilia B
Professional information: Diagnosed after seven years in the Air Force, I was allowed to stay in and retire after 27.5 years. My career was spent in Intelligence with numerous varied reserve tours over the last 18.5 years. Most of my work was in long range planning and crisis management. Currently, I work as a realtor at Jobin Realty and enjoy helping people to find the right place to live.
 
I have been and remain a very active volunteer in the State and National soccer communities, holding numerous offices and chairing and serving on many committees. I still referee and serve as a Delegate at Large to the Metro-DC Virginia Soccer Association. From 1986-1990 I was President of the Brookland-Bush Hill Civic Association, serving on the Van Dorn Metro Station Development Committee.
 
About nine years ago, I became active in the hemophilia community, first serving as secretary then president of HACA. I now serve on the Scholarship and Accountability Committees of the Hemophilia Federation of America (HFA) and on the Executive Committee as Secretary of the HFA Board.


 
April Owens
Name: April Owens
Board member since 2016
Connection to community: Advocate
Professional information: Regional Sales Manager, Superior Biologics Specialty Pharmacy
As a board member, I bring industry experience, employer resources, and exposures. Over the past 13 years, I have enjoyed Maryland, Virginia, and Washington Days activities, and other initiatives that allow the voices of the community to be heard and understood by those who are charged with creating policy and enforcing law. I'm passionate about fairness and inclusionand am honored to serve.

Prior to my time with HACA, I was a member of the Hemophilia Foundation of Maryland board for nine years. For decades, the hemophilia and bleeding disorders community has been the most fierceprotector of blood product safety, and the nation's blood supply. As someone who has personally received life-saving blood transfusions, I was drawn by this. Blood and plasma-derived product safety is important to me. Whether treating a bleeding disorder, saving a life due to injury or emergency, or managing a chronic condition or rare disease -- these things matter greatly. I appreciate HACA's watchful oversight of these things-- and the knowledge and experiences of all the members. I'm passionate about ensuring access to only clean, safe, well-tested, affordably-priced, and diverse need products and therapies.


 
Luke Runion
Name: Luke Runion
Board member since 2020
Connection to the community: My son has severe hemophilia A, he was diagnosed after birth in 2018. Hemophilia was new to our family and we have experienced great value from both connecting with and contributing to the bleeding disorder community. I feel privileged to serve on HACA's board and have the opportunity to make meaningful contributions.
Professional information: I am a Federal Government Relationship Partner at Bloomberg Industry Group (INDG), supporting the executive and legislative branches with information services. I enjoy working at INDG where the corporate values are innovation, collaboration, knowing your customer, working harder and smarter, and doing the right thing. These values exemplify how I will guide my personal efforts for HACA. My previous non-profit experience includes serving on the board of a collegiate club sport organization's national governing body. I welcome others to connect with me on Linkedin: https://www.linkedin.com/in/luke-runion-824b46139/


 
Jennifer Sleboda
Name: Jennifer Sleboda
Board member since 2018
Connection to the community: Hemophilia A
Professional information: I've worked in the field of international development for over 15 years, with a focus on transparency, accountability, and citizen participation in government. Currently, I'm a project manager at Population Action International (PAI), an international non-profit organization that promotes universal access to reproductive health & rights in both the U.S. and developing countries. In this role, I'm involved in supporting non-governmental organizations (NGOs) in six African countries with their health-related advocacy.
I joined the hemophilia community in early 2015 after my son was diagnosed with severe hemophilia A when he was two days old. His diagnosis was a complete shock, and I later found out that I am a carrier (and mild hemophiliac) due to a spontaneous gene mutation. I joined HACA a month after he was born and have been an active member ever since.


 
Marissa Zanno
Name: Marissa Zanno
Board member since 2021
Connection to the community: I have served as the Hematology Social Worker at Children’s National Hospital since 2013. One of the populations I work with are children diagnosed with bleeding disorders
Professional information: Licensed Clinical Social Worker in the Center for Cancer and Blood Disorders at Children’s National Hospital since 2013. I love working with patients and their families with hematology diagnoses, to provide support and resources throughout their time at Children’s Hospital.


 

 HACA Board of Directors Meetings