Hemophilia Association of the Capital Area

Board of Directors

2020-2021 HACA Board of Directors


 
Robin Monin
Name: Robin Monin
Board Position: President
Board member since 2018
Connection to the community: Carrier with two sons that have hemophilia
Professional information: Internal Medicine Veterinary Technician
I am originally from upstate New York, and have a brother with severe hemophilia A. My mother, grandmother and I are all carriers. I spent many summers working at the Double H Ranch Camp, a summer camp for kids with medical conditions. I met her husband, Phil, in Texas after college, and we moved to the DC area not long after we were married in 2012. We have two sons with severe hemophilia.


 
Callie Victor
Name: Callie Victor
Board Position: Vice President
Board member since 2018
Connection to the community: I've been connected to HACA since I was a young child when my mother served as the executive director and my father as treasurer of the organization. My husband, Joe, has also served as treasurer of the board.
Professional information: Assistant Professor, Division of Occupational Therapy, Shenandoah University.
I am the mother of two boys, and in my spare time enjoys walking my dogs, watching sports, and traveling.


 
Daniel Hay
Name: Daniel Hay
Board Position: Secretary
Board member since 2019
Connection to community: My son has severe hemophilia B.
Professional information: Litigation associate at Sidley Austin LLP
We’ve been so grateful for the HACA community since we received our son’s diagnosis nearly two years ago. I want to join the board to use my experience in law and policy to help advocate for families living with hemophilia.


 
Lindsay Runion
Name: Lindsay Runion
Board Position: Treasurer
Board member since 2020
Connection to the community: Carrier and Parent of a young son with Severe Hemophilia A.
Professional information: Regional Recruiter at Whole Foods Market, Mid-Atlantic Region. I'm originally from the suburbs of Philadelphia and moved to College Park to attend the University of Maryland. It was here that I met my future husband (and fellow HACA board member!) Luke. We've learned so much from HACA and about the world of bleeding disorders since our relatively recent introduction to the hemophilia community in early 2018.


 
Melissa Alba
Name: Melissa Alba
Board member since 2019
Connection to community: My mom and two younger sisters have VWD type 1. Our family has participated in HACA since around 2015.
Professional information: I’ve been working for Bridges International, a Christian student ministry at George Mason University since 2014. I spend the majority of my time connecting and welcoming international students to our campus.
My family has been very blessed and supported by the HACA community. As a family member of someone with a bleeding disorder, I want to learn more about this community and also give back. My desire is to serve and use my skills to better the HACA family.


 
Chris Guelcher
Name: Chris Guelcher, Hemostasis RN-BC, MS, PPCNP-BC
Board member since 2019
Connection to the community: Lead Pediatric Nurse Practitioner at Children's National Hemophilia Treatment Center
Professional information: I have been a nurse for more than 30 yearsand graduated from Georgetown University with a Bachelor of Science in nursing. I received myMasters of Science at the University of Maryland and was certified as a Pediatric Nurse Practitioner. I’vebeen at Children’s National Hospital since 1992 and the program coordinator for the Thrombosis and Hemostasis Center since 1997. I’m active in the bleeding disorders community locally (HACAboard member, past and present), regionally (Region III Mid-Atlantic Executive Committee Board member), nationally (Hemophilia Alliance Board member, ad hoc member of the Thrombosis and Hemostasis Societies of North America (THSNA) Board and member of NHF WWBD committee) and internationally (US representative and current Secretary on the World Federation of Hemophilia Nurses Work Group).


 
Artura Jackson
Name: Artura Jackson
Board member since 2018
Connection to the community: von Willebrand disease
Professional information: Employed by the Maryland-National Capital Park and Planning Commission Black History Program and helps manage three historic African-American sites in Prince George's County.
My younger brother and I both have von Willebrand disease type 1. I joined HACA soon after finding out about my diagnosis in 2005. I'm an advocate of education and information for women and girls affected by bleeding disorders. I live and work in Prince George's County and am an alumna of Salisbury University with both a bachelor of arts and master's degree in history.


 
Patrick Kanu
Name: Patrick Kanu (Member At-Large)
Board member since 2019
Connection to community: I was diagnosed with hemophilia at birth and have lived with it my entire life.
Professional information: Student at Montgomery Community College, Class of 2022
I always wanted to be part of a well-organized board that supports hemophilia and its complications. I have great computer skills and am very open-minded to things.


 
Steve Long
Name: Steve Long
Board member from 2013-2019; 2020
Connection to the community: Hemophilia B
Professional information: Diagnosed after seven years in the Air Force, I was allowed to stay in and retire after 27.5 years. My career was spent in Intelligence with numerous varied reserve tours over the last 18.5 years. Most of my work was in long range planning and crisis management. Currently, I work as a realtor at Jobin Realty and enjoy helping people to find the right place to live.
 
I have been and remain a very active volunteer in the State and National soccer communities, holding numerous offices and chairing and serving on many committees. I still referee and serve as a Delegate at Large to the Metro-DC Virginia Soccer Association. From 1986-1990 I was President of the Brookland-Bush Hill Civic Association, serving on the Van Dorn Metro Station Development Committee.
 
About nine years ago, I became active in the hemophilia community, first serving as secretary then president of HACA. I now serve on the Scholarship and Accountability Committees of the Hemophilia Federation of America (HFA) and on the Executive Committee as Secretary of the HFA Board.


 
Mallory O'Connor
Name: Mallory O'Connor
Board member since 2019
Connection to community: Hemophilia carrier
Professional information: Professional Information: Employed by Biotechnology Innovation Organization, a non-profit healthcare trade association
Serving on the HACA board would give me the ability to help give back to a community that has helped me grow both personally and professionally. I would love the opportunity to help the community in their fundraising, education and advocacy efforts through serving on the board. I have previously served as a part of the National Hemophilia Foundation’s (NHF) National Youth Leadership Institute (NYLI), including as the NYLI representative to the NHF Board of Directors. I also currently serve on the Board of the DC Area Arizona State Alumni Group and PAC-12 Alumni Group.


 
April Owens
Name: April Owens
Board member since 2016
Connection to community: Advocate
As a board member, I bring industry experience, employer resources, and exposures. Over the past 13 years, I have enjoyed Maryland, Virginia, and Washington Days activities, and other initiatives that allow the voices of the community to be heard and understood by those who are charged with creating policy and enforcing law. I'm passionate about fairness and inclusionand am honored to serve.

Prior to my time with HACA, I was a member of the Hemophilia Foundation of Maryland board for nine years. For decades, the hemophilia and bleeding disorders community has been the most fierceprotector of blood product safety, and the nation's blood supply. As someone who has personally received life-saving blood transfusions, I was drawn by this. Blood and plasma-derived product safety is important to me. Whether treating a bleeding disorder, saving a life due to injury or emergency, or managing a chronic condition or rare disease -- these things matter greatly. I appreciate HACA's watchful oversight of these things-- and the knowledge and experiences of all the members. I'm passionate about ensuring access to only clean, safe, well-tested, affordably-priced, and diverse need products and therapies.


 
Luke Runion
Name: Luke Runion
Board member since 2020
Connection to the community: My son has severe hemophilia A, he was diagnosed after birth in 2018. Hemophilia was new to our family and we have experienced great value from both connecting with and contributing to the bleeding disorder community. I feel privileged to serve on HACA's board and have the opportunity to make meaningful contributions.
Professional information: I am a Federal Government Relationship Partner at Bloomberg Industry Group (INDG), supporting the executive and legislative branches with information services. I enjoy working at INDG where the corporate values are innovation, collaboration, knowing your customer, working harder and smarter, and doing the right thing. These values exemplify how I will guide my personal efforts for HACA. My previous non-profit experience includes serving on the board of a collegiate club sport organization's national governing body. I welcome others to connect with me on Linkedin: https://www.linkedin.com/in/luke-runion-824b46139/


 
Jennifer Sleboda
Name: Jennifer Sleboda
Board member since 2018
Connection to the community: Hemophilia A
Professional information: I joined the hemophilia community in early 2015 after my son was diagnosed with severe hemophilia A when he was two days old. His diagnosis was a complete shock, and I later found out that I am a carrier (and mild hemophiliac) due to a spontaneous gene mutation. I joined HACA a month after he was born and have been an active member ever since.
I've worked in the field of international development for over 15 years, with a focus on transparency, accountability, and citizen participation in government. Currently, I'm a project manager at Population Action International (PAI), an international non-profit organization that promotes universal access to reproductive health & rights in both the U.S. and developing countries. In this role, I'm involved in supporting non-governmental organizations (NGOs) in six African countries with their health-related advocacy.


 
Michelle Stielper
Name: Michelle Stielper
Board member since 2015
Connection to community: I have been actively involved with the bleeding disorders community for the past 18 years since my younger brother was diagnosed. Since then I have also received a personal diagnosisand have become a mother to an affected son. I have made countless friendships and consider the community an extension of my family.
Professional information: Regional Care Coordinator, Biomatrix Health Group
My experiences give me a unique perspective! I have been a community member for quite some years. I was an unaffected sibling - or so I thought - for eight years before receiving my carrier status. Then two years later, I was diagnosed as a hemophiliac or "shemophiliac," as I like to say. Then I went on to have my affected son a few months after receiving an official diagnosis. So, I would say that I can sympathize with an unaffected sibling, an affected individual, and as a parent or caretaker. I try to stay well-versed on the latest and greatest to make sure that I can continue to be a resource for our fellow community members in whatever area that help is needed.


 

Additional representation: Hemophilia Federation of America Board Member: Steven Long

 HACA Board of Directors Meetings