Hemophilia Association of the Capital Area

Board of Directors

2019-2020 HACA Board of Directors

Dana Brayshaw
Name: Dana Brayshaw
Board Position: President
Board member, 2013-2017, 2018
Connection to the community: Hemophilia B
Professional information: Business Development Manager at Signature Financial Partners, LLC.
I've been involved with the hemophilia community for a large portion of my life. I served on the HACA board as secretary from 2013-2017 and was HACA's representative on the HFA Board of Directors from 2015-2018. I hope to encourage advocacy within the organization, and work for access to higher quality healthcare as well as affordable treatment.

 
Robin Monin
Name: Robin Monin
Board Position: Vice President
Board member since 2018
Connection to the community: Carrier with two sons that have hemophilia
Professional information: Internal Medicine Veterinary Technician
I amoriginally from upstate New York, and have a brother with severe hemophilia A. My mother, grandmother and I are all carriers. I spent many summers working at the Double H Ranch Camp, a summer camp for kids with medical conditions. I met her husband, Phil, in Texas after college, and we moved to the DC area not long after we were married in 2012. I gave birth to my son, Jack, in November 2015, who has severe hemophilia, and we recently adopted a 2-year-old boy named Luke, who also has severe hemophilia.

 
Callie Victor
Name: Callie Victor
Board Position: Secretary
Board member since 2018
Connection to the community: I¡¯ve been connected to HACA since I was a young child when my mother served as the executive director and my father as treasurer of the organization. My husband, Joe, has also served as treasurer of the board.
Professional information: Assistant Professor, Division of Occupational Therapy, Shenandoah University.
I recently became a mother to a sweet baby boy and in my spare time enjoys walking my dogs, watching sports, and traveling.

 
Sandesh Mohan
Name: Sandesh Mohan
Board Position: Treasurer
Board member since 2018
Connection to the community: Parent of young man with hemophilia
Professional information: Solutions architect for the US Navy supporting multiple Navy Aegis Programs.
As a parent of a son with hemophilia, I have seen the many epic events thataffectfamilies with hemophilia in their daily and professional life. This has led to understanding new and innovative medical research been conducted worldwide and am always looking forward to seeing what FDA has to offer to the hemophilia community.

 
Mark Antell
Name: Mark Antell
Board member since 2016
Connection to the community: Hemophilia A
Professional information: Retired from the Environmental Protection Agency
I'm one of the few, lucky, hemophilia-affected guys who survived both: a childhood before factor, and, viral contamination of factor.
By 1990, almost everyone with hemophilia had hepatitis C (HCV). I was one of the principals in "People with Bleeding Disorders and HCV," an organization which lobbied to remove institutional barriers to the rapid development and availability of HCV therapy. HACA helped by joining and promoting our Citizen Petition to FDA, a key step! My liver was on the edge of failure when I was cured of HCV. In addition to my HACA work, I also serve on the executive board of the Hemophilia Federation of America.

 
Eena Kapoor
Name: Eena Kapoor
Board member since 2014
Connection to the community: Physical therapist at Children's National Hemophilia Treatment Center
Professional information: Physical therapist for 12 years, working extensively with bleeding disorders, neonatal and pulmonary diagnoses as well as medical volunteering experience in developing countries.
I bring to the board the treatment center perspective, as well as rehabilitative care experience.

 
Artura Jackson
Name: Artura Jackson
Board member since 2018
Connection to the community: von Willebrand disease
Professional information: Employed by the Maryland-National Capital Park and Planning Commission Black History Program and helps manage three historic African-American sites in Prince George's County.
My younger brother and I both have von Willebrand disease type 1. I joined HACA soon after finding out about my diagnosis in 2005. I'm an advocate of education and information for women and girls affected by bleeding disorders. I live and work in Prince George's County and am an alumna of Salisbury University with both a bachelor of arts and master's degree in history.

 
April Owens
Name: April Owens
Board member since 2016
Connection to community: Industry representative
Professional information: Client Relations Executive, Hemophilia & vWD Specialty Services - CVS Caremark Rx Specialty Services, 10 years
As a board member, I bring my 10 years of industry experience and employer resources. I was a member of the Hemophilia Foundation of Maryland board for nine years.

 
Jennifer Sleboda
Name: Jennifer Sleboda
Board member since 2018
Connection to the community: Hemophilia A
Professional information: I joined the hemophilia community in early 2015 after my son was diagnosed with severe hemophilia A when he was two days old. His diagnosis was a complete shock, and I later found out that I am a carrier (and mild hemophiliac) due to a spontaneous gene mutation. I joined HACA a month after he was born and have been an active member ever since.
I've worked in the field of international development for over 15 years, with a focus on transparency, accountability, and citizen participation in government. Currently, I'm a project manager at Population Action International (PAI), an international non-profit organization that promotes universal access to reproductive health & rights in both the U.S. and developing countries. In this role, I'm involved in supporting non-governmental organizations (NGOs) in six African countries with their health-related advocacy.

 
Michelle Stielper
Name: Michelle Stielper
Board member since 2015
Connection to community: I have been actively involved with the bleeding disorders community for the past 16 years since my younger brother was diagnosed. Since then I have also received a personal diagnosisand have become a mother to an affected son. I have made countless friendships and consider the community an extension of my family.
Professional information: Regional Care Coordinator, Matrix Health Group
My experiences give me a unique perspective! I have been a community member for quite some years. I was an unaffected sibling - or so I thought - for eight years before receiving my carrier status. Then two years later, I was diagnosed as a hemophiliac or "shemophiliac," as I like to say. Then I went on to have my affected son a few months after receiving an official diagnosis. So, I would say that I can sympathize with an unaffected sibling, an affected individual, and as a parent or caretaker. I try to stay well-versed on the latest and greatest to make sure that I can continue to be a resource for our fellow community members in whatever area that help is needed.

 
Melissa Alba
Name: Melissa Alba
Board member since 2019
Connection to community: My mom and two younger sisters have VWD type 1. Our family has participated in HACA since around 2015.
Professional information: I’ve been working for Bridges International, a Christian student ministry at George Mason University since 2014. I spend the majority of my time connecting and welcoming international students to our campus.
My family has been very blessed and supported by the HACA community. As a family member of someone with a bleeding disorder, I want to learn more about this community and also give back. My desire is to serve and use my skills to better the HACA family.

 
Daniel Hay
Name: Daniel Hay
Board member since 2019
Connection to community: My son has severe hemophilia B.
Professional information: Litigation associate at Sidley Austin LLP
We’ve been so grateful for the HACA community since we received our son’s diagnosis nearly two years ago. I want to join the board to use my experience in law and policy to help advocate for families living with hemophilia.

 
Mallory O’Connor
Name: Mallory O’Connor
Board member since 2019
Connection to community: Hemophilia carrier
Professional information: Professional Information: Employed by Biotechnology Innovation Organization, a non-profit healthcare trade association
Serving on the HACA board would give me the ability to help give back to a community that has helped me grow both personally and professionally. I would love the opportunity to help the community in their fundraising, education and advocacy efforts through serving on the board. I have previously served as a part of the National Hemophilia Foundation’s (NHF) National Youth Leadership Institute (NYLI), including as the NYLI representative to the NHF Board of Directors. I also currently serve on the Board of the DC Area Arizona State Alumni Group and PAC-12 Alumni Group.

 
Patrick Kanu
Name: Patrick Kanu (Member At-Large)
Board member since 2019
Connection to community: I was diagnosed with hemophilia at birth and have lived with it my entire life.
Professional information: Student at Montgomery Community College, Class of 2022
I always wanted to be part of a well-organized board that supports hemophilia and its complications. I have great computer skills and am very open-minded to things.


 

Additional representation: Hemophilia Federation of America Board Member: Steven Long

 HACA Board of Directors Meetings