Hemophilia Association of the Capital Area

Hemophilia Treatment Centers

In 1973, the National Hemophilia Foundation launched a two-year campaign to establish the creation of a nationwide network of hemophilia diagnostic and treatment centers. The goal was to provide a range of comprehensive services for patients and families within one treatment facility. Today, there are about 141 federally funded treatment centers and programs across the country.

The concept of comprehensive care is to treat the whole person and the family, through continuous supervision of all the medical and psychosocial aspects of bleeding disorders. Comprehensive care is total care because every facet of the person is addressed, including their physical, emotional, psychological, educational, financial and vocational factors. The development of comprehensive care over the past 30 years has greatly improved the quality of life for people with bleeding disorders as well as helping to increase the life expectancy from an average of just 20 years in 1960 to close to the national average today of 76 years. The treatment center care network has also improved patient’s overall health. Studies have shown that the comprehensive model of care provided at HTCs can reduce the overall healthcare costs of their patients by 74%. Moreover, care in the HTC network has been shown to reduce morbidity and mortality.

Individuals who go to HTCs will not only find state-of-the art medical care, but also benefit from an experienced, caring staff that takes time to develop comprehensive treatment care plans for patients and families. Hematologists, nurses, social workers, psychosocial professionals and physical therapists not only help consumers with their medical care issues, but also lend tremendous emotional support.

The treatment center not only provides specialty care but can also act as a resource to the patient’s regular family physician or dentist.