Hemophilia Association of the Capital Area

Upcoming Events

Here's what is coming up: 

 

Learn more about Vonvendi during webinar

Join us on Sunday, June 6, at 4 p.m. for an informational webinar to learn more about Vonvendi, Takeda’s product for people with von Willebrand Disease. You’ll hear from Janet Martin, MSN, RN-BC, CPN, and Erica, a patient ambassador who will share about her experience and treatment with Vonvendi for vWD. Click here to register, deadline is Wednesday, May 2. 

Thank you to Takeda for supporting HACA’s 2020 Fall Festival and Walk at the Platinum level. This program is one of the benefits they receive for their sponsorship of the walk.  Click here to register.

 

Branded webinars with CSL Behring

CSL Behring is having two branded webinars series: For Afstyla on Sunday, June 13, with four sessions available; and for Idelvion on Wednesday, June 16, at 8 p.m. Register through HACA’s Constant Contact website so we will know who is participating, and you’ll receive an email with the link to sign up through the third-party event host.  If you participate, you will receive a $25 GrubHub gift card.

Click here for June 13     

Click here for June 16     

 

Families Group to Meet for Outdoor Event

Join HACA’s Families of Young Children group in person on Saturday, June 12, from 3:15-6 p.m. for an afternoon at Huntley Meadows Park in Alexandria, VA. The group will meet at the park for a guided Wildlife Walk and hands-on presentation with a naturalist. The group will enjoy a walk through the forested trails and wetland boardwalk. Look and listen for seasonally active wildlife like birds, frogs, turtles, dragonflies, muskrats and more. Bring a picnic dinner and blanket to visit with other group members after the tour; the park is open until dusk (HACA will not provide food for this event). Right now masks are still required outdoors, and the park authority is examining the current guidelines and will adjust accordingly. The Families of Young Children group is designed for families that have a child/children 5 years of age or younger with a bleeding disorder. Deadline to register is Wednesday, June 9 and there is a limited number of spaces. Click here to register.

 

Young Adults Group plans first gathering

Join the first-ever HACA Young Adults Group in-person gathering on Sunday, June 20, from noon-2 p.m. at the small lakeside pavilion at Lake Accotink Park in Springfield, VA. This group is open to young adults with a bleeding disorder ages 18-29. For this inaugural gathering, the group will meet for some social time at the pavilion to talk and play games. Lunch will be provided; please register by Thursday, June 17, so we can get your lunch order. Board member (and 23-year-old college student) Patrick Kanu will be leading the group. Get to know other young adults that are living with a bleeding disorder. Masks will still be required, and space is limited due to COVID-19 restrictions. Click here to register.

 

 

Save the Date:

 

Virtual vWD event in July

HACA will hold its annual von Willbrand education event on Saturday, July 24 and Sunday, July 25, with one session each day. The event will take place virtually. The first session on Saturday will start at 10 a.m., and the program  topic is still TBD; keep an eye out in HACA weekly updates for more information. The Sunday session will be at 7 p.m. and Dr. Gary Kupfer, director of the Georgetown University Hemophilia Treatment Center, will lead a discussion on treatment options for von Willebrand disease, as well as information on any new therapies on the horizon. Each session will begin with a few words from our event sponsors, and will end with breakout rooms so participants can learn a little more about vWD products from each company. Look for registration information in HACA weekly updates.

 

Chapter Picnic Returns!

HACA will have its annual chapter picnic on Sunday, August 22, from 11 a.m.-2 p.m. at Occoquan Regional Park in Lorton, VA. Catch up with friends in the bleeding disorders community that you haven’t seen in a long time! More details to come.